Showing posts with label cd4. Show all posts
Showing posts with label cd4. Show all posts

Thursday, April 11, 2013

My "anniversary" visit and my new CD4 count

I went to my treatment hub yesterday (Research Institute for Tropical Medicine) for my CD4 count and other so-called "anniversary" tests (blood, chemistry, physical laboratory tests done yearly) and I was already dreading the thought of going there, particularly the travel to and from my place.  Since I took a day's leave from work, I was thinking maybe I would not stay long in RITM and spend the rest of the day at home.

I tried to keep my spirits up but there was this nagging feeling that I may encounter a hitch on my way to RITM and during my stay there.

I woke up at 5 a.m., showered, dressed up, and left for RITM at 6 a.m. with no breakfast because those set for "anniversary" tests should go fasting the night before. Also, CD4 count is set from 7 a.m. to 8 a.m. only.  I arrived in Alabang a little past 6:30 a.m. and went to the public transport station for RITM-bound vehicles and just as I was approaching the station, a vehicle was leaving and I had to run to catch it. Alas, I didn't so I had to wait for several minutes for another vehicle to ferry people to RITM.  I got in RITM before 7 a.m. and I sprinted to the laboratory to submit my lab request papers that I already had in my possession.  I had my x-ray first then blood extraction for CD4 and CBC.  I  chanced upon a PLHIV-friend of mine and chatted with him for awhile.  As my turn for the blood extraction was still sometime later, I went to the Aids Research Group (ARG) clinic to submit my Philhealth papers and ran back to the laboratory.  I was touched by the gesture of the nurse in the ARG when he saw my records and greeted me belated happy birthday as I marked my natal day the day before.  After blood samples were taken from me, I went to the canteen to eat as I was FAMISHED!

After breakfast, I went to the clinic for my PPD shot and met Ate Ellen who told me that I have to wait until 1 p.m. for my physical checkup and so I would know my  CD4 count. Darn! I was already done with my lab tests past 8 a.m. and I really didn't want to stay too long in RITM.  Having no choice, I decided to stay in the clinic where Ate Ellen was and got bored so I went to the ARG clinic to wait and also got bored. :(

I went back to Ate Ellen past 10 a.m. and luckily my CD4 count result was already forwarded to her. My CD4 count is now 457 from 409 in April last year.  I was downhearted upon learning of the minimal increase in my CD4 count but consoled myself with the thought that an increase is much better than a decrease.

Ate Ellen told me I could go home and the physical examination by the doctor on duty isn't really important unless I needed to consult the doc about something that I was suffering from - HIV-related ailments or what.  Ate Ellen told me she will just forward my CD4 count result to the doctor when he or she arrives at 1 p.m.

However, Ate Ellen noticed that I was wearing a charm bracelet then she told me I shouldn't have worn it in RITM since it would absorb the negative energy in the place. Argh! (I bought that bracelet in Binondo on Chinese New Year's Eve last February to protect me from harm, sicknesses, and other bad things and to attract money.) Well, that means I have to brace the sweltering heat and go to the shop in Binondo where I bought the bracelet to cleanse and re-energize it.  There goes my earlier plan to go home from RITM to rest. Sigh.

So, from RITM, I proceeded to Binondo to have my bracelet cleansed and re-energized in the shop where I bought it and asked if I should not wear the bracelet in a hospital.  The shop owner, a Filipino-Chinese lady, told me that generally speaking, I could bring it in a hospital since it would protect me from any negative energy or ailments while I am there but its "power" would wane a bit.  After having a quick lunch in Chinatown, I went home.  I arrived in my place at 1 p.m., took a shower right away and had a nap with a smile because of the good result of my CD4 count

Sunday, March 31, 2013

A friend's unpleasant experience at RITM-ARG

Hello guys! So, how was your Lenten break or vacation? I hope everyone had a peaceful respite from the daily grind and managed to reflect or observe the Holy Week as solemnly as possible.  Mine went well and I stayed home most of the time and went to church to attend the Lenten activities or rites.

It's back to work for me today and it's been a slow day so far so I took the opportunity to update this blog.

Early this morning, I texted a PLHIV-friend of mine to ask how he was and coincidentally, he was at the Research Institute for Tropical Medicine-Aids Research Group (RITM-ARG) this morning for his regular lab tests (CD4 count, CBC, etc.) and he complained that he was informed only last Saturday, a non-working holiday, that he needs to submit or have Philhealth membership documents already for his lab tests.  He was pissed off because he was only told about it last Saturday but how could he gather them when it was a holiday.  So the nurse in-charge asked for the Philhealth documents when he went to RITM this morning and he explained that he could not submit them since he was notified only last Saturday.  Good thing, he was allowed to take the lab tests and the Philhealth documents will just have to follow.

To backtrack a little, PLHIVs who are not taking ARVs like my friend are not covered by the Philhealth package for PLHIVs so they would have to pay for all the necessary tests like CD4, CBC, etc.  I guess that policy has now changed because my friend is now required to submit Philhealth papers so his laboratory tests would be taken care of by the government agency-regardless of he/she is taking ARVs already.

Anyway, like all other PLHIVs who are enrolled at RITM and have previously complained of the shabby treatment from ARG staff and bad service they get from the RITM-ARG, my friend has decided that he wouldn't want to go through the same kind of situation next time and has decided on the spot that he will transfer to Philippine General Hospital (PGH)-Aids Research Group.  He also said he has had enough of a nurse at RITM-ARG "who acts as if she owns RITM."  As of my last text, he is gathering all his records to bring them to PGH already.

I can imagine the legwork and stress my friend went through this morning and in working on his transfer from RITM to PGH.  Stress is a big no-no for PLHIVs.

With the bad experience of my friend, I hope I do not suffer the same at RITM-ARG when I go there for my CD4 and other so-called anniversary tests on April 11.  I'm keeping my fingers crossed.

Monday, February 11, 2013

About taking ARVs

"Di ko pa need mag-ARV (antiretroviral). So happy."

So goes a tweet I read from an account of a PLHIV. I have a Twitter account but I am not out with regard my HIV status in that account.

While I am happy for that PLHIV, whose Twitter account I shall not name, that he needs not take ARVs (for now) probably because his CD4 count is still way beyond the threshold of 350, I believe that even if one's CD4 count is still above normal, it is best to take ARVs to make sure that a PLHIV doesn't contract an opportunistic infection (OI) during the lull from one CD4 test to another.

From what I know, in the US, PLHIVs take ARVs even if their CD4 count is way above the threshold. It is only in the Philippines where a PLHIV is required to take ARV already and they have remained healthy with minimal to no incidence of OIs for a long time.

I have been taking ARVs - Lamivudine-Zidovudine and Efavirenz - since April 2010.  So far, I haven't had any serious OI or health setback.

While I do understand that taking ARVs would require a PLHIV's strict adherence to taking it, "an ounce of prevention is worth more than a pound of cure", so they say.

I believe that taking ARV, along with regular exercise, a healthy daily diet, getting enough sleep, taking multivitamins, cutting any unhealthy vices like smoking, and keeping oneself happy most of the time (no to depression!) would ensure that a PLHIV's CD4 count remains high.


Wednesday, January 30, 2013

Crazy policy at RITM-ARG

I don't know exactly when it was implemented but I believe it was in the middle or past middle of last year.  I am referring to the new policy at the Aids Research Group (ARG) at the Research Institute for Tropical Medicine (RITM) whereby those who would undergo CD4 count should be at the clinic between 7 and 8 a.m. from that time on.  No CD4 count requests will be entertained after that.  If a PLHIV misses his CD4 count appointment, he or she will have to take the next one SIX MONTHS AFTER. I call that crazy but I will get to that in awhile.

Let me digress for a moment.  In the past, CD4 counts are done every Mondays, Tuesdays, Thursdays and Fridays at RITM and PLHIVs who need to go through it have until 10 a.m. to do so. It was good and didn't need to be changed until last year. As they say, if it ain't broke, why fix it?

Anyway, when I went to the RITM-ARG sometime August or September last year, I was surprised to find an announcement on the way setting a new schedule for CD4 count. Weekdays and between 7 a.m. to 8 a.m. only. Okay, I told myself, I will just have to get up really early when I'm due to have my CD4 count (the last one I had in April last year was 407 or 409).

I talked to Nurse Maram (in-charge of laboratory tests for PLHIVs) and she informed me of the new policy so my CD4 count was set on October 26, 2012. She asked for my contact number so she can text and remind me of it prior to the date it is supposed to be done.

Unfortunately, I forgot all about my CD4 schedule because I was really busy at work and I didn't receive any text from RITM-ARG reminding me about it as Nurse Maram had assured me. So I texted Ate Ellen and Ate Beth or RITM-ARG if I can have it reset to November or December at the latest. They referred the matter to Nurse Maram who adamantly rejected my request to reschedule my CD4 count to April 11, 2013. Geez!

Now my concern is this: what if my CD4 on October last year had dropped dangerously low which I will never know because Nurse Maram said I can only have my next CD4 count in April. And what if something bad happened to me because my CD4 was already very low and it wasn't known because Nurse Maram rejected my request to have it reset to November or December.  Nurse Maram is to blame for it.

Anyway, I hope the RITM-ARG would think of possible scenarios relative to a change in any policy or rules that might put a PLHIV at a disadvantage.  Lives are at stake here.  They should always be aware of that.


Monday, October 17, 2011

What's up, what's new with me?!

Whoa! It's been more than 2 months since my last entry here. Things have been pretty hectic at work, more so after I got promoted at work as head of our company's administrative department and as a result, I now work during the day (normal working hours yipee!) - Mondays to Fridays (9 am to 6 pm) and Saturdays (9 am to 4 pm). Yes, I work six days a week and you might say "that sucks" but I love my new job now since I get to be busy unlike when I was still assigned in the nightshift when I was mostly idle for like nine, 10 hours. Better to be busy than doing mostly nothing. So far, my sleeping pattern has returned to normal. I got sick for a few days though (acute upper respiratory tract infection) early this month and I guess it was because my body was adjusting to my new work sked.

Another piece of good news I want to share is that I finally learned of my viral load results after waiting for it for several months (!). As of last March, I am already undetectable. Thanks in large part to the antiretrovirals (ARVs) I've been taking and adherence to a healthy lifestyle (enough sleep, balanced diet, exercise, taking multivitamins regularly, no vices of any kind). I still have the virus in me but at least the volume is not so much anymore that it is barely detected already. I hope my next viral load results would still show I am undetectable.

I am due for my 4th CD4 count next month and I am keeping my fingers crossed that it would be higher now. My CD4 count results are as follows:
- April 2010 - 315
- October 2010 - 479
- May 2011 - 530

Well guys, this is all for now and till my next post!





Monday, May 16, 2011

Good numbers

For persons living with HIV (PLHIV) like me, numbers are a major factor when it comes to our regular checkups. One of the most important of the tests done like CBC, triglycerides count, and viral load, is the CD4 count, which checks whether one's CD4 or T-helper cells have either decreased or increased in number. The CD4 or T-helper cells are the immune system's fighters against any form of viral or bacterial infection. Since I am immuno-compromised, my CD4 count is in peril of being depleted if I am not taking antiretrovirals or taking any steps to keep myself as healthy as possible, which included managing my stress levels and not get depressed for any reason.

I had my CD4 count last Friday - the third to be done since I was diagnosed in March last year. It also coincided with the anniversary of my first checkup on April 16, 2010 at the Research Institute for Tropical Medicine (RITM) in Alabang, Muntinlupa City, which is my chosen treatment hub. Since it has been more a year, I needed to undergo the annual checkup like CBC and other tests. The CBC, by the way, is meant to find out if my CBC level has not gone down since one of the effects of taking ARVs is a decrease in the CBC. But I was more interested in learning my CD4 count because I wanted to know if it has increased or decreased in number.

Hereunder is my CD4 count:
April 16, 2010 - 315 (below the 350 threshold which automatically placed me under ARV treatment, which started on April 26, 2010)

October 2010 - 479 (A 164-point jump)

May 2011 - 530 (A 51-point jump)

So I was delighted to learn that my CD4 count had increased further. Although the increase was lesser, I am satisfied with it but I wished it was higher. I guess my regular workout had helped my CD4 go up. I asked a fellow PLHIV how come the increase in my CD4 count was lesser this time, he said a PLHIV who is already accustomed to the ARV would usually have an incremental increase in his CD4 count in succeeding tests unlike in the past or from the time he started taking ARVs.

Three weeks from last Friday, I will ask for my viral load since it is usually available a year after a PLHIV's 1st CD4 count. Hopefully it would show that the virus in my system is already undetectable. I am keeping my fingers crossed.

Friday, October 15, 2010

479; 137!

As I mentioned in my previous post, I had second CD4 count yesterday (Friday) after my 1st one last April. It was also time to have my CBC because I had been having low hemoglobin count since last June.

I got home at 6.30 a.m. yesterday from work, took a quick nap and went off at 7.45 a.m. to my treatment hub - Research Institute for Tropical Medicine (RITM) in Alabang. I was nervous during the bus ride because I wasn't sure of what my new CD4 count and CBC results would be. The slow traffic at Edsa near the Magallanes interchange and at the Sucat intersection on Osmena highway added to my anxiety. I had to be at RITM before 9 a.m. because CD4 counts there are only done up to 10 a.m. I reached the Alabang area past 8.30 a.m. and arrived at RITM a few minutes before 9 a.m. I dropped by the clinic for pozzies to get my prescription notes for my CD4 and CBC, rushed to the laboratory and had them before 9.45 a.m. since there were also some other pozzies ahead of me who were scheduled to have their CD4 count too.

As a backgrounder, a CD4 count is done for HIV-positive individuals and it determines the remaining CD4 or t-helper cells in the body. When one has HIV, the virus depletes the body of CD4 or t-helper cells, whose primary function is to fight viruses and bacteria in the body. When something is not done to slow down the virus from depleting the body of CD4 or t-helper cells, it makes the person prone to all sorts of ailments.

After I had my tests, I went to the lounge for pozzies to relax and wait for the results, bonded with the lounge staff and other pozzies who were there, had lunch at the RITM cafeteria and was called to the clinic at past 2 p.m. My CBC results were in and my hemoglobin count went up from 135 last month to 137! Yey! I hope it is a precursor of my CD4 count results, which were not in yet and would be know later yet. My hemoglobin count was being monitored because from 153 in April, it went down to the 120s range starting last June, a side effect of one of the antiretrovirals (ARVs) I was taking. So, I was prescribed ferrous sulfate and told to eat green, leafy veggies and cooked animal liver (eww).

I got home past 4 p.m., so sleepy but anxious to know my CD4 count so I called up Ate Ana of the RITM clinic and she relayed to me the good news. My CD4 count has gone up! It's now 479! My first CD4 count last April was 315. I was ecstatic and said a prayer of thanks.

I wasn't really optimistic of getting a high CD4 count because even if I was already taking ARVs and living a healthy lifestyle (eating well, getting enough sleep, taking vitamins daily, etc.), I had been depressed and under quite heavy stress from work and after learning of my status last April. Depression and stress can wreak havoc on one's immune system so for an immuno-compromised person, he or she has to manage it well. So it was really a big relief when I learned that my CD4 had gone up and my hemoglobin count was on its way to recovery.

I slept with a smile and fitfully at that last night. Thanks to the good news I got. :)

Monday, October 11, 2010

Anxious

Come Friday will be my 2nd CD4 count. Along with it, I will also have my CBC since my hemoglobin count had been low last May, June and July - it was in the 120s range. Thankfully, my CBC went up last month to 135.

What is CD4 anyway and what role does it play in the body? About.com defines CD4 cells as cells that have molecules called CD4 on its surface. The same website also says CD4 cells, otherwise known as "helper" cells, initiate the body's response to invading micro-organisms such as viruses.

From my first CD4 count of 315, I am keeping my fingers crossed that my CD4 has gone up. ChemistryGuy told me that efavirenz, one of the antiretrovirals that I am taking, helps boost the CD4 count. Well, I hope so but I also learned that there has to be some effort also on the part of the pozzie to help it go up e.g., getting enough sleep, taking vitamins, evading too much stress, and eating well.

I see to it that I get enough sleep, I eat well and take vitamins. However, my work sked (I am on night shift) might affect my CD4 count. And I haven't been exactly free from stress and emotional turmoil the past few months.

Well, let's wait and see. And if my CD4 count has fallen, I am confident of the intervention that the doctor would prescribe for me to help it go up before my 3rd CD4 count scheduled in April next year.

Wednesday, April 28, 2010

And so it begins

Today marks the start of my medication that will be for a lifetime. Yes, I've been prescribed antiretrovirals (ARVs) already since my CD4 count is below the threshold and when you begin taking ARVs, you are going to take it forever and on time always so the virus won't get resistant to it. :(

I was at RITM this morning so that Dr. E can discuss with me the results of the tests I underwent during my 1st visit last April 16. So far, so good. I have no TB and Hepa B. Thank goodness for that!

Dr. E told me that, yes my 1st CD4 count is 315 - which is below the 350-1215 range that it should be for someone my age. After briefing me on ARVs and what time I should take it, she issued a prescription, which I gave to Ms. Ana. I went to the pharmacy and while waiting for my meds, the reality of my status and taking medicines forever hit me hard like a slap on my face that I felt like crying. I snapped out of it and went back to the clinic where Ana briefed me some more on ARVS, the possible side effects, and what I should do and not do if and when the side effects manifest.

On my way home from RITM, I set the alarm on my cellphones to remind me to take my meds because I didn't want to rely on my memory alone. My memory has been failing a bit the past weeks.

Come to think of it, pozzies now are luckier compared to those who got hit by HIV in the 80s and early 90s when there were no ARVs yet. So thanks to ARVS, they will put this virus in me under control so it won't wreak any more havoc on my immune system.

As I gulp down my meds, let me say: Cheers!